Living With the Genome

About this book

A whole new world of genetics research is underway with its exciting potential for a better understanding of heredity and genetically inherited disease, with opportunities for prevention, management and cure. But the current explosion of human genetic information has the potential for abuse also, for damage to rights, privacy and fair treatment for individuals and vulnerable groups. This book brings us up to date with important contributions from the authoritative Nature Encyclopedia of the Human Genomeon the urgent social, legal and ethical aspects of the Genome enterprise.

Contents

Acknowledgements - List of Contributors - Glossary - Introduction; A.Clarke - PART 1: THE HUMAN GENOME PROJECT: GENETIC RESEARCH & COMMERCIALISATION - Introduction; A.Clarke & F.Ticehurst - Celera Genomics: The Race for the Human Genome Sequence; M.A.Fortun - Human Genome Project as a Social Enterprise; P.L.Bereano - Commercialization of Human Genetic Research; T.Caulfield - Patenting of Genes: A Personal View; J.Rifkin - Human Genome Diversity Project (HGDP): Impact on Indigenous Communities; J.Marks - deCODE and Iceland: A Critique; E.Arnason & F.Wells - Informed Consent in Human Genetic Research; P.R.Reilly - Gene Therapy: Expectations and Results; P.A.Martin - PART 2: GENETIC DISEASE: IMPLICATIONS FOR INDIVIDUALS, FAMILIES AND POPULATIONS - Introduction; A.Clarke & F.Ticehurst - Genetic Counseling: Psychological Issues; B.B.Biesecker - Genetic Testing of Children; A.Procter - Genetic Risk; L.Prior - Genetic Susceptibility; C.Emslie & K.Hunt - Thrifty Gene Hypothesis: Challenges; R.McDermott - Carrier Screening for Inherited Hemoglobin Disorders in Cyprus and the United Kingdom; B.Modell - Carrier Screening of Adolescents in Montreal; C.R.Scriver & J.J.Mitchell - PART 3: DISABILITY, GENETICS & EUGENICS - Introduction; A.Clarke & F.Ticehurst - Nazi Movement and Eugenics; P.Weindling - Eugenics: Contemporary Echoes; T.Duster - China: The Maternal and Infant Health Care Law; S.Guo - Disability, Human Rights and Contemporary Genetics; T.Shakespeare - Mentally Handicapped in Britain: Sexuality and Procreation; J.McCarthy, V.Sinason & S.Hollins - PART 4: GENETICS & SOCIETY: INFORMATION, INTERPRETATION AND REPRESENTATION - Introduction; A.Clarke & F.Ticehurst - Gene as a Cultural Icon; D.Nelkin - Heredity: Lay Understanding; M.Richards - Inheritance and Society; P.Atkinson, A.Bharadwaj & K.Featherstone - Privacy and Genetic Information; V.English & A.Sommerville - Insurance and Genetic Information; T.McGleenan - 'Race', IQ and Genes; J.Beckwith & J.S.Alper - Criminal Responsibility and Genetics; J.Bostock & G.Adshead - PART 5: GENETIC EXPLANATIONS: UNDERSTANDING ORIGINS AND OUTCOMES - Introduction; A.Clarke & F.Ticehurst - Genetics as Explanation: Limits to the Human Genome Project; I.Cohen & H.Atlan - Darwin and the Idea of Natural Selection; G.Dover - Sociobiology, Evolutionary Psychology, and Genetics; P.Bateson - Creationism; Customer Reviews

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Biography

ANGUS CLARKE is Professor in Clinical Genetics, Institute of Medical Genetics, University of Wales College of Medicine, Cardiff, UK. FLO TICEHURST is Genetics and Society Research Officer, Genetics and Society Research, The Wales Gene Park, Cardiff, UK.